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Caregiver Podcast

18
Aug 2019

An interview with Shane Burcaw and Hanna Aylward about Living with SMA

August 18, 2019

In honor of August being SMA Month, Editor-in-Chief Gary Edward Barg interviews Shane Burcaw, 26 years old, an author, blogger and speaker living with SMA, who currently resides in Minneapolis, MN with his fiancée Hannah Aylward.

Shane and Hanna openly share details of their lives for the nearly half a million who follow their YouTube channel and in the name of changing the public perception of those with disabilities.

 Shane published his memoir Laughing At My Nightmare in 2014 and and a children’s picture book, Not So Different, in 2017.

 Together with his cousin Sarah, Shane also founded a nonprofit organization, Laughing at My Nightmare, Inc., which is committed to spreading positivity and helping others overcome adversity, while providing equipment grants to those living with Muscular Dystrophy.