In honor of August being SMA Month, Editor-in-Chief Gary Edward Barg interviews Shane Burcaw, 26 years old, an author, blogger and speaker living with SMA, who currently resides in Minneapolis, MN with his fiancée Hannah Aylward.
Shane and Hanna openly share details of their lives for the nearly half a million who follow their YouTube channel and in the name of changing the public perception of those with disabilities.
Shane published his memoir Laughing At My Nightmare in 2014 and and a children’s picture book, Not So Different, in 2017.
Together with his cousin Sarah, Shane also founded a nonprofit organization, Laughing at My Nightmare, Inc., which is committed to spreading positivity and helping others overcome adversity, while providing equipment grants to those living with Muscular Dystrophy.
In this episode, Editor-in-Chief, Gary Edward Barg interviews William Fleming, PharmD, is Segment President, Healthcare Services, where he is responsible for Humana’s clinical and pharmacy businesses that service all Humana segments. He has a proven passion for using an entrepreneurial spirit in simplifying healthcare, providing value for consumers (both the patient and the physician), and developing high-performing teams that share the common goal of improving health outcomes and clinical quality.
In this episode, Editor-in-Chief, Gary Edward Barg interviews the author of the new and extremely important book for Family Caregivers, What does it feel like to die: Inspiring New Insights into the Experience of Dying. As a long-time hospice volunteer, Jennie Dear has helped countless patients, families, and caregivers cope with the many challenges of the dying process. Inspired by her own personal journey with her mother’s long-term illness, Dear demystifies the experience of dying for everyone whose lives it touches. She spoke to doctors, nurses, and caregivers, as well as families, friends, and the patients themselves. The result is a brilliantly researched, eye-opening account that combines the latest medical findings with sensitive human insights to offer real emotional support and answers to some of the questions that affect us all.